Current Condition
August 17th
Hi gang. Looks like there are still a few people checking the blog now and then. The rule still holds – write interesting things frequently and people will visit. Looks like I’m not writing frequently enough, because I certainly am writing interesting things! 
Just a note that the blog is getting spammed quite frequently, so I’ve had to turn on comment moderation. So it may take a little time for your comments to show up. No offense to you, I’m just trying to keep offensive spammers from using our blog….
The brace is pretty much off now. We’re setting a date for the brace burning now – most likely next Saturday night. We’ll do S’mores after that as well. Family tradition. We do S’mores at all brace burnings. 
We finally did the intrathecal baclofen test yesterday. Basically, it was a spinal tap with an injection at the end. With a moderate dose, Henry was COMPLETELY limp and flacid for almost 14 hours afterward. It actually made things very difficult. It felt like I was riding on top of a Slinky. My new therapist Reuben had to basically cancel my session because I was just completely unresponsive. Even at therapy today I wasn’t completely back. Normally, I could force my legs to extend into a standing position when under load, but they were still unresponsive today. So we’re still going to consider the baclofen pump for another couple of weeks…
Here’s a pictures of the therapy we’re doing these days:
July 18th
As I’m going back to work and generally trying to get a nice rhythm to life, we haven’t updated in a while. I thought I would post here a message I sent to my siblings tonight. It’s a little on the personal side, so skip it if this kind of thing doesn’t match your relationship with me. It’s your call:
Just a quick update on my health: Spasticity is still the biggest health issue. It ebbs and flows, but when it’s strong, it really prevents normal daily activities – like getting in and out of cars. I have an appointment with a surgeon to do the pre-surgery eval to insert a Baclofen pump. I’m already at a very high dosage of the oral version and Dr. Reichman recommended that I go this route. My own research verified this therapeutic approach. So here I go…
On the “totally awesome” front, Dr. Reichman gave me the thumbs up to ween off the brace! Needless to say, I dropped that sucker like a brick. I wear it only when fatigued or when pain tells me to put it back on and for safety’s sake, when I do car transfers. I should be totally out of it in a couple weeks. Then, the burning… (“evil laugh” soundtrack starts now).
We have seen some interesting recovery as well. During our nightly stretching ritual, I thought “I wonder…” and tried to move my toes. I’ll be a monkey’s uncle if those things didn’t move! So we have been trying different things over the last couple of weeks. No significant recovery of sensation anywhere below the partial paralysis zone, but there has been some reportable, but very small, motor control return. Almost all of the recovery has been in my left leg – which is the most spastic. Apparently, this correlation is seen in a lot of spinal cord injury cases. So what can I do? push my toes down on my left foot, flex part of my quadraceps on my left leg, flex part of my left gluteous system(butt), and slightly turn my feet inward (a hip muscle movement). Now all of these are very small movements and by no means a recovery of function. There is one element of function however that I have figured out how to use these muscle groups together: when I get into bed at night, I typically have my pants on still. Shoes and shirt have been removed while in my wheelchair. So I kind of dump backwards on the bed and pull my legs up into kind of a ball. Then I pull my pants off and chuck them into a nice location for easy pick up – my wheelchair. Then I kind of rotate myself around and position myself for laying down. But then, how do I stretch my legs out? To date, I would try to throw them down – often failing. Then I’d try to initiate a spasm to get them to spasm straight out (I could do this by tickling my belly – go figure.) But this works rarely as well. So now, I can actually just “think” my left leg into extending. It’s slowish and not consistent right now – but it’s improving. I’m excited to still have change in my injury. I’m not counting on walking until the resurrection, but this is really good to help me maintain tone in muscle groups that could help me keep my heart healthy. More on this later. I still hope for some sensory recover because sense means safety. Moving a toe or flexing a muscle here and there is more of a curiosity.
June 8-10 – San Francisco
Well, we finally did it! Off on a jet airplane to San Francisco. What were the learning tasks you might ask:
Fun items to do:
How many completed?... EVERY SINGLE ONE! Yes! Certainly some struggles, but no real failure. It was a great learning experience and a big confidence builder. Greg helped me every step of the way and we both learned together how I could be more independant the next time. A BIG thanks goes to Greg for helping to plan, execute and celebrate this great trip!
This is me in an “aisle chair”. Basically, I transfer into this skinny chair from my regular everyday chair at the bottom of the jetway. Then they wheel me to my seat and I transfer in from there. This ended up being an adventure because we had TONS of help – 5 people – and the seat on the plane was a bulk head seat – where the arms don’t move up. Yowza – that meant a pretty difficult transfer. But it worked!
This is me in my seat on the plane. A wonderful flight attendant, Patty Berg-Anderson, helped us like an angel to make this whole thing work. She and Greg met on a flight from Boston where Patty is based. She called me multiple times and contacted the flight attendants on this flight to ensure that we had a good experience. Jo, the crew chief for this flight met us in the jetway: “You must be Steve! I’m so glad to meet you.” Wow, what a greeting. We knew this trip was going to be stellar after a start like this.
This is a candid shot of me, my grandmother and my brother Daniel. We had a wonderful afternoon with Gram in her backyard. Daniel joined us from Aptos and we went to dinner at a perennial favorite – Harry’s Hafbrau.
This is Greg and I at the Giants game in San Francisco. 9th inning was quite suspenseful: Giants at bat down by one with one out. Then a single, a double and a walk to load the bases! The crowd was on there feet (with me hoisted up in my chair). Then, for cryin’ out loud, two full count strike outs! But we had great seats – all of the wheel chair access seats are on the field level for nose-bleed seat prices. Negotiating the stadium was straight forward once we found the right person to give us answers – ‘Where is the ADA entrance?’ and ‘Where are our seats?’ being two important questions with apparently classified answers. :-p
This is me with Doug and Katrina Spencer. Greg and I met them on Jefferson Street (aka pier street) for a trip amongst crowds in the wheel chair. Lunch on Fisherman’s wharf and dessert at Ghirardelli Square followed. The Spencers are recent Californians with Doug starting at UC Berkley soon. We had a great time. Lots of laughs and smiles. A tip for anyone visiting the SF piers: handicap parking is free! Yes!
Notice the change in skin color… We did have quite a bit of sun in the south bay. Definitely ‘top down’ weather. The funny thing was that our flight on a spacious 737-800 was cancelled. So we flew on a little Canadair Regional Jet to get home. That was a little nerve racking as we realized that this plane was not only smaller, but typically had a stairway entrance from the tarmak. But it worked out just fine. SFO had a jetway to get on the plane and the captain called ahead to SLC to make sure they had a ramp available when we landed. It actually ended up being a little easier than the bulkhead seat on the flight out because the chair arms could lift out of the way. But we learned that not all skinny chairs are created equal. ouch!
It was a great trip with lots of learning and plenty of fun. I’m looking forward to the next one to cement these learnings in my brain. Maybe India?
As of Sunday, May 28, 2006
It’s been nearly four weeks at home now and it’s time to give a full update. OK… Maybe it’s WAY past time! I’ll try to post these in a series so you don’t have to wait for HUGE update with pictures and stuff. We’ll also be clipping a lot of the content into the archive folder so it doesn’t take so long to load every page.
In the spirit of “Current Condition”, we’ll start there – at current condition. I’m feeling fine. But it hasn’t been that way for the last four weeks. Last weekend, May 20th or so, I started shivering uncontrollably in my chair. Andrew helped me out of the chair as my body started to spasm severely. Andrew took my blood pressure and it was very high (140/90). These were the signs of “autonomic dysreflexia”. Basically, this is a problem encountered periodically with any Spinal Cord Injury (SCI) above T6. It is a reaction of the feeling part of the body to a problem in the paralyzed part of the body. The problem, of course, is that the problem can’t be communicated effectively, so the upper part of my body just freaks out. In general, this freak-out is a marked increase in blood pressure and blood pressure related symptoms. Untreated, the blood pressure increases until stroke, heart-attack or death happens. And who wants any of that?! So we try to find the cause and correct it.
In the case of the problem last weekend, the problem was severe dehydration. So we started pumping water into me. We also called a nurse friend. She confirmed the diagnosis. We kept treating it. By 2am, the blood pressure was normal, shivering stopped and everyone was ready for sleep! But it was still a scary episode. Andrew behaved bravely. My favorite quote from the episode was from Andrew’s quick call to Ellen to tell her to hurry home: “Mom? You need to come home right now. Dad’s having that dyslexia thing!” You make up your own punch line…
Well, 24 hours later, I had a raging uniary tract infection. That really cramped my progress and made Ellen’s life quite a pain. Fever, no sleep, cranky, the whole gig. But Ellen was patient and kind through the whole thing. Four or five days later on antibiotics, I was feeling much better. Now it’s Sunday and I’m feeling OK. Ellen slept all of last night as well. Whew! Let’s not do that again for a looooong time!
Also, on the current condition front, spasms. The spasms in the paralyzed part (now called ‘Henry’) have been steadily increasing. This isn’t bad intrinsically since they don’t hurt or anything. And frankly, it’s the only way Henry can exercise. But… When you’re trying to get in the car, wheel around the store, sleep, watch a movie, or type on your blog… it can really get in the way. Typically, one or both of my feet will jump up and down; one or both legs will flex or retract; or my back or abdomen will flex. Sometimes, I’ll be trying to move my foot into the van to start a transfer and it will feel like my leg is fighting me. Or, I’m sitting here at the desk, and my left foot pops up and down a few time, kind of jiggling my whole body. And sometimes, when I’m trying to sleep, one of my legs will just pop up – from a stretched position to a full retraction. First, let’s hope Ellen isn’t in its path. Second, let’s hope I wasn’t asleep – because I’m not anymore!
Spasms can be decreased by a drug called Baclofen. We recently increased the dosage to try to compensate for the increased spasms. Unfortunately, while the body adjusts to the new dosage, I feel extremely tired for about a week – peaking about an hour after every dose. So
And finally, the blood clot. Some of you may know that right before the surgery to fuse my back, a filter was put in my venus cava vein. This filter would break up or trap any blood clots that tried to get to my lungs or brain. It is designed to stay in for four to six weeks. Well, near the prescribed time, we scanned my legs with the ultrasound to determine if there were any problems. Well, yes, there was. A small clot was found in my right leg. So I started taking blood thinners. Then a couple weeks later, I went to get the filter out. Then, in the middle of the procedure, the doctor says, “hey, there’s a clot in the filter. Let’s not do this right now.” OK. We scheduled for two weeks later. So we went back two weeks later and scanned again – still a clot in the leg. But no change in the clot since the original scan. Let’s call it “stable”.
So now the judgement call. Do you take the filter out hoping that the “stable” clot won’t move? Or do you leave the filter in, thus making it permanant, and take the risk that a clot doesn’t form around it? We opted to take it out, stay on blood thinners and do more ultra sounds in a few weeks. And that brings you up to date.
As of Sunday, May 28th, 2006 – Part II
The transition home.
Although we knew in our heads that it was supposed to be hard, that true grieving would start, visitors would slow, etc. , the preparation never matches the reality. You prepare, then you just enter the field and do the best you can. That’s what we’re doing now.
Speaking openly and honestly, I feel more disabled here at home than I have anywhere else. It’s the “Dad” things that are the hardest: change a light bult, rough-house wrestle with the little ones, set the table, mow the lawn, pull weeds, etc. I just can’t do them right now – especially with the brace. That leaves my chore list rather short. That has made me sad.
I have a good shot at the “father” tasks at home including, praying, talking with the kids about their day, interviewing dates, etc. I look forward to the “mostly brain” work at Novell, where my disablity doesn’t have an impact.
I’m not sad all the time of course. But I am sometimes. As we adjust and get used to this new routine, we are finding plenty of happy times. The goal is to shorten the sad times and spread them very far apart. No time for pity parties; no patience for sulk sessions.
We have adjusted the kitchen pretty well so I can reach just about everything that would be needed on a daily basis either with my hands or with my “claw”. The claw is a little grabbing tool that is pretty strong. It extends my reach by about 2 feet.
The new rooms on the main floor are working out just fine. The little girls think we are so lucky because we don’t have to come down stairs to get to the kitchen. I must admit that this is a nice feature.
More later….
As of Sunday, May 14, 2006
We would like to publicly thank the designers, builders, and decorators of our “New Normal” master suite:
Daniel and Rick Townsend for design, blueprints, planning and city code navigation ( Fuse Architects Inc. )
Bruce, Charlie, Chad, and Jake Black (and sincere thanks to their wives that sacrificed as well)
Mindy Childs for her energy and eagerness to help with the shopping shopping shopping
Dozens of friends and family members gave endless hours of service to our family and home over the past two months. THANK YOU from the bottom of our hearts! We couldn’t have done it without you!
Love, Steve and Ellen
PICTURES STILL TO COME…STAY TUNED!
LN_at_home@yahoo.com
As of Monday, May 8, 2006
Just a quick update to let everyone know that I was released from the hospital last Tuesday. It has been a whirlwind since then. So we apologize for the sparse updates. We have a ton of pictures to post, but need to get the time to do a good post. Hopefully within the next couple of days.
We are adjusting to home life well in the new space. But it is pretty slow right now. 
I’ll tell you more about the routine later. But most importantly. We thought we should let you know that we will be having an open house on Saturday, May 13th from 12-6pm at our house in American Fork (226 W 1450 North). We hope to see you here. You will be welcome in the backyard as well as the main floor where you can inspect the amazing construction by Bruce Black and a number of other ward and family members.
More later…
-Steve
As of Thursday, April 27, 2006, 2:15 AM
(Ellen:) I am sleeping at home tonight. I must be sleeping pretty well at the hospital because in the morning Steve tells me about all the excitement I missed during the night. Sometimes I need to sleep at home, something about a house, a family, bills. . .
I cant believe it’s been six days since we have updated this site. “Busy” hardly describes our past week! More and more field trips around town and to the house have taken up the “free time” we would be writing. More and more visits with the doctors and therapists concerning physical changes and medical advice. More and more “try this today” experiences in morning/bedtime routines. Steve will share his stories about these outings and new advances.
I want to give a bit of enlightenment to those of you who are wondering about the structure of the rehabilitation wing, answer some questions I had before we ‘moved’ here, giving you a better idea of what our minute tominute schedule entails. (I thought about adding this in here today after being approached by the father of a man who was just in an accident and he asked us, in line at the snack bar, what we had done to get where we are now, and what can he and his family expect in their future.)
The Rehab Unit is home to all kinds of recovering injuries. Every person admitted here has a whole team of staff assigned to them for evey need you can imagine. For us, it kind of goes like this:
“Rehab Doctor” that prescribes medications and explains everything going on inside the body as it adjusts and heals;
“Physical Therapist” works the muscles and joints to have peak performance in wheelchair and overall strength;
“Occupational Therapist” teaches daily skills, such as showering, dressing, transfering to the car/van, popping over small curbs, house rebuild needs, public restrooms;
“Community Transition Therapist” takes the patient out on the town, to order a burger, going to the office, bowling, fishing, symphony;
“Social Worker” guides us to helpful websites, liason to insurance, schedule out-patient visits;
“Family Psychologist” meets with us individually and in small groups to discuss the changes and stresses we are expeiencing from this “new normal”, as a couple and as a family;
“Nurses” and student nurses (hard to tell the difference ,they are all so wonderful) bring supplies and meds, they watch over our physical and emotional needs between our appointments with all these other people, they care for me as well as for Steve, as I am a factor in his healing and acceptance process.
“Greg and Wayne”...I don’t know where they sleep, but they must have a couch somewhere close by becuase one or the other is with us pretty much all the time! : ) They bring in drinks and food more fitting to Steve’s desired taste, they relay messages to work and family members, they sit in the corner and watch us work things out, they take my place as caregiver when I need to tend to the needs of my children or self, they have held our hands and provided shoulders to cry on when the going gets too tough, they sign the guest book without me asking ; ) and they never tire from my dumb jokes or steve’s spastic attacks. These two friends will certainly be our home health care when the insurance stops paying for professional nurses and therapists. Throw Edi in the mix and life can’t get much better! We love you three so very much!! Thank you for so much extra-mile support.
Disclaimer: I appologize, now after the fact, to Dr Hilmo, Shane, Andy, Sandra, Missy, Kent, Randy, Lisa, Ammon, Charles, Christi, Fannise, Amanda, Beckie, Carolee, Carolyn, Lynette, Dick, Ruth, Ruben, Brian, and all the rest, if I did not explain your titles and roles correctly. And I must add a huge hug to Cindy and her partner for daily cleaning our room and having so much patience with our wacky routine changes!
I am thinking to myself about now, “should I keep typing my thoughts and feelings, or make a list of photos I want Andrew to add to the update, or finish working on Adam’s Arrow of Light presentation for tonight, or eat a bowl of Wheeties, or clean up the pile of sheet music on the floor by the piano, or update the list of service projects for the scouts and relief society, or try to sleep with two little girls and a heap of laundry on my bed, or read all the personal e-mails and family newsletters I have been missing, or sweep up the trail of dry wall foot prints from the front door to the new master suite, or find the cases to all the CDs laying around without covers, or look online for nice accomidations in utah with wheelchair accessability, or just drive back to the hospital and be with Steve for his 4 AM blood draw and bladder scan. So many choices…” Yikes – it’s almost 3:00 now, I’d better make up my mind soon and get going, or stopping.
Please keep the comments coming! (scroll to the bottom of this page, if you haven’t figured it out yet)
Cookies always welcome, “never can have too much cow bell”.
TTFN ~LN
As of Friday, April 21, 2006 11:00AM
(Ellen:) I am happy to see that Steve had the time and energy to type in a long message last night. He is usually so tired by the end of the day that it’s hard for him to prop up to see the laptop balanced on his “bellah”. He has been so positive and determined through this whole ordeal, I keep telling him if roles were reversed i would be very cantancorous! Dispite all the setbacks in his health, Steve has pushed everyday to learn and accomplish more and more with every breath. All the nurses and therapists like to come in and visit with Steve, they seem to gather at his workouts and his bedside whenever they have a short break from their other duties. I feel very good about his care when I am not here with him because I have personally experienced the superior staff and personal attention he is receiving. (yes, I am typing on his laptop in rehab today)
Back at the ranch… I try to spend 24 hours with Steve and then 12 hours at home. It doesnt always work out to everyone’s liking, but we are all learning to adjust to being constantly flexible (which is harder for me than anyone!). Being home is so much more complicated than being at the hospital. At rehab there is one person to care for, and he just needs water, pillows, meds and exercise. At home there are five to ten people to care for, a phone, a doorbell, toilets, laundry, tattle-tails, flooded basement, garage storage to find new place for, yard work to manage, flooring to order for the new rooms, checkbook to balance…stuff like that.
Phone: My cell phone has 30 slots – all full. The house phone has 50 slots – often full.
Doorbell: The constant ringing means that lots of people are eager to serve our family! Meals, child care, home repairs, housekeeping, music and reading lessons.
Toilets and Laundry: Our five kids are doing a splendid job at keeping up with their chores, as long as someone tells them every day to do them. Neighbor ladies and teenagers are doing a great job to fill in as substitute moms in many areas.
Tattling: is common in most households, I assume, so i try to ignore it and blame it on circumstances.
Basement water, Garage storage, Yard mantenance: I am grateful for the deep friendships I have deleveloped in the Cub Scout and Boy Scout programs in our community. Because of this i have been able to make quick phone calls to any of these young men and they show up to do ANYTHING I need without complaint. I am very proud of their services to me, ET.
Remodeling project: The best contractors we know have volunteered their labors every day in a rush to have a ‘home base’ for Steve to come home to. As Steve keeps improving I keep worrying that the new room wont be ready in time. Yesturday i was feeling very nervous about the timing and i got a call from the builder, he had a list of miracles occuring around the project. He said, “This never happens, Ellen, in all my years of construction, this never happens! This is not normal.” I will list those for you later. But in summary, after only ten days of building, the garage looks like a natural part of the house. Electrical, plumbing, framing, dry wall, nice smooth ramp, sweet hookups for computer and phone , pocket door, closets, ceiling finished, all tools cleaned up. The exterior door still looks like a perfect double garage while the interior master suite looks like it was meant to be there all along. The only things left to do are the taping, painting, flooring, and fixtures. We are hoping to starting moving furniture in on April 29, but possibilities are leaning more towards May 1. He is expected to discharge from rehab on the 27th, so we will pray for a few more miracles in the sub work.
Budget: Many finacnial aides have come through, some small and some not so small, but all grandly appreciated. We send our love and gratitude to all of you who have prayed on our behalf, and to those that have opened your pockets to assist in this new life adventure. (A big hug to Anthony for his comment last week, very well said, and has been well accepted) The money we had saved up for our spring break vacation is now well spent on a wonderful new “accessible” room for Steve and I.
Adam (11) is here today, downstairs in the priactice kitchen making brownies with Steve while I sit on his bed and type my message to everyone out there reading along. TTFN ~ LN
As of Thursday, April 20, 2006
“Happy Spring” to all of you out there from the “Transition Room” here in the Rehabilitation Unit at UVRMC. It’s been a while since I’ve updated the current status and I have a lot to tell you about. Here’s hoping that most of it is interesting.
I have enjoyed reading the posts from so many of you. I realize it takes a bit of courage to put words out there that so many might see. It is a great conversation among friends. So keep them coming. If you have questions, please post them and I’ll try to get them answered soon.
I am now in the “Transition Room”. There are a few differences between this room and my original rehab room. The biggest is that this room has a regular queen size bed. This means I have to move and sit up without the aid of slippery sheets, hand rails and adjustable height and incline. This makes some things much harder to accomplish; but much more like real life. The two hardest things to accomplish are moving from a flat (or supine) position to an inclined position on a foam wedge and moving from my wheelchair to the bed. Fortunately, I have learned how to do both of these things with minimal assistance earlier this week. Yes!
Not to brag or anything, but here are a few other things I can now do with reasonable independence. By this, I mean someone stands there and watches me do it just to make sure I don’t do something stupid.
Also at this stage, my care from nursing is self directed. This means that they come when I call them for help. This, of course, is the philosophy here in rehab. By the last days here, we really shouldn’t need them anymore. Ellen and I will be able to take care of everything. The more I do, the better.
I’ll have to update more later as the night is slipping by. But here are a couple other cool things that we’ve done in the last couple weeks. The whole family went bowling at Fat Cats on Monday. Natalie and I went to a movie today. I drove my wheelchair down the street to Gandolfo’s and picked up dinner for Ellen and I. All of these things have a large training value of course – besides being pretty fun.
Some of you may have heard that I have had a few health problems. The majority have been taken care of. Urinary tract infection has been cleared. The blood clot is shrinking. The nausea has subsided. The only thing left is a nasty bout with cluster headache. But we are hoping that this will also subside soon as we moderate medication and get a little more sleep. Speaking of which….. I better get to brushing my teeth.
Heavenly Father continues to bless us and protect us in all aspects of this transition. And many of those blessing are coming from your hands. We will never be able to thank you enough for your faith, prayers and good works in our behalf.
With all of my love and gratitude,
Steve
As of Wednesday, April 12, 2006
Dad was able to be visited from Andrew on April 8th, last Saturday. It was the night of Prom, and I (Andrew) brought my date, Lizzi, to visit Dad while we were all dressed up. It was lots of fun for everyone to talk to him about our day date, and all the fun things we have done, and plan to do. It was very enjoyable.
Today Dad practiced getting into and out of the Mustang. It was fun, yet sad for him at the same time. All of our eyes were opened to how difficult it will be. The saddest part was the fact that our chances of selling our prized sports car are high, it being too difficult to get in and out of with a wheelchair. Pictures will come.
As of Monday, April 10, 2006
Quotes from Steve for the day:
“Being paralyzed is really inconvenient”
(while trying to lift heavy leg (ankle) weight up to his knee to take off his shoe)
“Im pretty much awesome”
(after pushing 50 pounds on rick shaw machine)
“There are so many things I can’t do yet, It’s amazing!”
(roll over in bed, wash hands in a sink, ride in a car, shave self, sneeze, cough, sing, toiletries…)
“I would rather people ask quetsions than stare at me silently.”
(it is hard for visitors to know what to say, he is not tired of answering the same questions often, so go ahead ans ask!)
As of April 7th, 2006
That last picture is edited a bit. We put Adams mouth on him….
As of April 4th, 2006
And finally… a post from Steve…
A hardy “Hello!” to all of you out there that have visited, continue to visit and post messages here on our blog. It is difficult to express how much support and hope I feel when I read your messages. Feelings of love and friendship for you are overwhelming at times. Never before have I realized how connected and interdependent we are in this life. I am beginning to see what a vast and strong fabric I am a part of. And because of that connection I hope we all know and feel, we will all go through this process of change to accept a different but very happy life with Steve in a wheelchair. It is just going to take us a little time to cross the bridge.
I feel your faith and prayers as I take steps forward every day in multiple facets of this process. Through your messages, the many notes and flowers, visits in the hospital and many other ways, the Lord has seen fit to ease the burden of sorrow and sadness from our shoulders. Ellen and I truly have witnessed miracles both physically and emotionally as we got through this together.
Here is just a small view into our current condition. Why do I say “our” instead of “my”, you may ask? Well, Ellen and I and other very close to me are going through rehabilitation together with Ellen learning new things every day as well. Also, I cannot do this without your faith and prayers. So you are very much a part of every step of progress I make every day.
I’m up now every day in my borrowed “ultra light wheel chair” for a few hours. Titanium frame, super cushion seat, locking hubs, three degree cambered wheels… the works. With my brace on (for a another 3 months… Ugh!) I can now move in and out of bed and to the workout tables to the chair with “moderate” assistance instead of “maximum” assistance. This means I’m learning “transfer” technique and building strength again. I can pretty much move myself around in bed as well. When I need help, Ellen is learning how to help and coach me. She is absolutely awesome!
As far as wheelchair technique goes, Shane (my physical therapist) is teaching me how to hold a wheelie and how to use that to cross uneven surfaces in the parking lot. Kind of tough, but a fun challenge because mastering the wheelchair means MORE FREEDOM! Yeeha!
Some things that you might not have thought that I had to relearn… I’m now dressing and undressing my upper body by myself – mostly Personal hygiene things like shaving, clipping my beard, brushing teeth, etc. I’m also doing with minimal assistance. They were pretty easy, but I just can’t do them at the sink yet. I’ll get there. One thing I haven’t mastered yet: I still can’t get my hair to lay down right! I think I’ve got permanent bedhead! Yikes!
I’ll spare some other details. But suffice it to say, I’m learning to be independent in many other ways as well. (I even have to learn how to get milk out of the fridge from the wheel chair!) I won’t be completely physically independent when I go home, but we’ll have the basics down solid. We’ll be learning for months to come.
Medically, we’re progressing very well. No more oxygen supplement; no more IV; 28 staples out of my back today; decreasing medications; no ‘supplemental’ pain medication, no breathing treatments at night. Basically, I’m no longer connected to any machines and I’m less dependent on medications. All good things. The last real healing element is my back bone which will take a number of months to fuse the thoracic vertebrae where the injury is (at T5)– hence the brace I like to call my “exo-skeleton”. I’ll be burning the flammable parts of my brace in a ritual ceremony in our backyard the day I shed it. If you are interested in attending the celebration, I’ll post the time, place and appropriate attire suggestions in a couple months.
I’ll try to post more clinical updates and some spinal cord injury (SCI) info that is pertinent to us later on. We are so busy that it is difficult to get all of the things done that I want to do. Although I must say that it is fun to update you like this!
Finally, how are we doing spiritually? I can say that as my body is healing and adapting, we are being nurtured and comforted by the Holy Spirit daily. The Savior has lifted burdens and is guiding in every step. My testimony of the atonement has grown so dramatically that I have oft felt the need to repent for not understanding for all of these years. Many conference talks this last weekend, as many of you have mentioned, were delivered directly to us. Tears of new understanding and hope were shed as the Spirit bore testimony to our hearts and minds of many things that were said that applied to our new situation.
Well I’ve got to go get on with dinner and visitors. So I’ll have to end now. Please feel free to keep posting on this site. It really does boost my spirits to read your encouraging and faithful notes. We’ll try to update current condition as much as possible. I am so blessed to have you all supporting me from near and far. I thank our Father in Heaven every morning and night for you. And a special thanks to Andrew, my strong and talented son, for taking this on and making sure things are working well. I love you Andrew and am proud to be your father.
-Steve
As of March 31, 2006
Not so good things to say:
“I was just thinking of all the things you can’t do any more”
“How does it feel to sit here all day watching tv, waited on by nurses?”
“Now you can be an Olympian!”
Better things to say:
“I cant wait for you to be at work again so we can make fun of your presentations”
“Here are some notes I took at the fireside for you”
“Did you hear about the chicken that crossed the road?”
“Can I try out your cool wheel chair?”
“I saw your wife the other day and she seems to really have it all together!” :^D
“What does this gadget do?”
“What flavor of Jamba Juice can I bring you?”
Thank you for cards, letters, emails, food, flowers, plants, cookies, photos, music, visits, service hours, repairs, transportation, child care, mental health care, fasting, praying, dontaions, scrapbooks, tears, eopen ears, open arms, open hearts.
As of March 29, 2006 @ Noon, Wednesday
Ellen here again. i typed and typed several paragraphs here yesturday, inbetween doc visits and therapy sessions, but somehow it all got lost. (perhaps because I didnt save it before i closed the lid…ya think?!)
I n summary, every day is a new challenge. We have our ups and downs, I get up, he’s stays down. I am so pleased an d impressed with the staff here, all caring for him, and even a crew to care for my needs and worries. He is almost done with the antibiotics for a blood born infection. He is getting stronger at pushing his own wheels further down the hallway. He is doing alot of his own grooming now. He will be getting a second back brace to wear while his origonal brace dries after showering, which is done is a cool pvc recliner. the staples are looking good and the incision is healing well. As soon as the spine and skin are feeling better from the surgery I have no doubt that his upper body exercises will progress much faster!
Dad’s brother Ricky
Begining Therapy
As of March 27, 2006 @ 11:00 pm
Tonight we had Adam’s family birthday party with Steve (ellen typing). After dinner at JCW’s, Adam’s choice, we took the whole family, including Aunt Shelly and Uncle Anthony, to rehab. We started the party by going around the room and saying what we like about Adam, which he really enjoyed. Then he opened his awesome remote control car, battery already charged and ready to go. Steve was in good spirits as we ate the Spiderman cake and talked about everyone’s weekend. We left him around 9:00, when my mom came for a visit. Two hours later now, six kids in bed (including Shelly’s baby, Cammi) and I am tired! I spent half the day with Steve, and then the return at night for FHE.
During my visit today, I was personally interviewed by the social worker. She wanted to make sure I completely comprehend Steve’s new abilities and how it will affect my own future. She also impressed upon me the need to be with him during all parts of the day, rotating each day what routines i participate in. It was suggested rather strongly that I let my household be run by all the willing volunteers, allowing me more time to experience this rehabilitation for myself, not just second hand from phone calls. It was a big pill to swallow. Just so you know what Im thinking and feeling (everyone wants to know, who am I kidding?!) ... I was expecting to visit every other day and call him in between, putting in about 12 hours personal time with him a week. But I fully understand now the need to be here during the different therapy sessions and doctor visits, so that I will be as one with my husband in grasping the details of this transfiguration in his life, literally chaning my life as well. My general plans for the next few weeks are to be here twice a week for the early morning routine, and three times a week for the afternoon routine, overlapping lunch with him each day. This will give us a chance to work on physical progress and also talk about things like emotions, bills, new car, etc. Our weekends will be inconsistant as his routine is different and usually family members are in town for Saturday and Sunday. This is why we are asking for you to make an evening appt with either my sister or Stve’s secretary, so that he can have an even flow of visitors without over burdening his health.
I want to personally thank all friends, family, associates for love and concern during this tremendous experience in all our lives. I realize that the new stature will be something everyone will learn to adapt to, especially you short people that can now look down to talk to him. ; ) I am so very grateful, in a sad way, to discover how many people are truely affected by the life of one man, and I am sorry for not realizing this earlier in my relationship with him. I have learned so much about my Steven from words you have left for us on this website. My gratitude for this blog is extended way beyond my son and brother setting it up and keeping it current; I thank you all for taking the time to come here, and for having the heart to leave a piece of yourself with us.
My love to you, everyone all around the world! Most Sincerely, Ellen
As of March 27, 2006 @ 2:42 pm
Dad has asked that visitors check in with Shelly Spencer at 319-4679 (text prefered), or Penny Schmidt at 861-6707 (Steve’s admin). You can plan on visiting between 6 and 9 pm. Please keep your visits to 15 minutes, as it is tiring to be hospitible. Thank you.
As of March 26, 2006 @ 10:47 pm
Dad has been able to push himself around in a wheelchair, put on pants and a shirt (not by himself yet) and has been off medication enough, and had enough energy to be able to be lonely. He has a room where he can see the mountains, and the beautiful sky, and enjoys occassional visitors. Progress is being made, hard and slow going. With great assistance from nurses and family members, hopes are that he’ll be out of rehab and able to come home in 4 – 6 weeks.
As of March 24, 2006 @ 9:41 pm
Dad was moved into rehab today. He is in good hopes, but won’t be making too much progress until he heals a bit more. There isn’t as much attention given to him in rehab, but he should be OK. No visiters yet, he still needs a bit more time. Once he can get his clothes (at least a shirt) on by himself, then he said he’d like some visitors. Thanks!
As of March 22, 2006 @ 5:41 pm
Steve’s last two days have been very busy, with times of discouragement. He has had a fever and finally today they traced it to an intestinal bug. He is on anti-biotics that should take care of it.
Yesterday an Orthotist named Russell came with Steve’s new “boots” (foot braces). They suspend his heel so he won’t get sores on them, have an extension to protect his toes, and fit snugly around his leg with velcroe. He will wear them for several hours each day to keep his feet and ankles in a position that will help make him more stable in a wheelchair.
Steve’s younger brother, Daniel, was here from California all day Monday and Tuesday. Daniel is an architect and they talked about how to retro-fit Steve’s present home, and also talked about perhaps building a new home in the future that will better meet Steve’s life style. His visit gave a boost to Steve’s spirit.
Life is getting more involved for Steve. This morning he spent time with Dr. Reichman (back), Dr. Pearce (lungs), Dr. Hilmo (rehab), Dr. Martha Hartgraves (O.T.), a Rehab Psychologist, and his PT team: Dan, Brandon, Chris and Kim. (Besides all the regular hospital nurses and staff.)
Physical Therapy is being done right in ICU in Steve’s bed. It is very painful and takes a lot of effort. It is hard to watch the PT people put Steve’s back brace on and slowly lift him to sitting position and hold him there for a couple of minutes bec ause we know it is painful for him. But Steve is very determined and just grits his teeth anddoes everything they ask him to do. He really wants to get well enough to move to the Rehab section of the hospital.
Hospital food does not taste good to Steve. He said he can’t seem to taste bitter and salty, just sweet. So today we brought him a Carribean Passion Jamba Juice to supplement his lunch. That made him excited and he drank it all. It was a nice change from the Boost protein drinks!
Your messages are printed off and read to Steve. They encourage him and help him make it through the long days. His bed has his back to the window in the hospital room, so he can’t see outside, which he doesn’t like. He misses seeing the sky, trees, and snow. We got him a small mirror to hold up occasionally to see the window. He doesn’t get to use his mirror as often as he would like to.
As of March 20, 2006 @ 4:04 pm
Dad met with the rehabilitation doctor, named Doctor David Hilmo, Director of Rehabilitation. They put on a big brace (I’ll try to get a picture) and told him what rehab would be like. The brace is so that when he can be more mobile, like sitting up and moving a little sooner. So the brace is for stability. He is happy and talking. He is known as “Mr. Sunshine” in the ICU, and his current nurse, Misti, commented, saying “I have to say that Steve is one of the most pleasant people in here.” We gave him a shave, not removing his goatee, but trimming it down so that it doesn’t “makes me feel like I have boogers.” He is doing great!
As of March 19, 2006 @ 5:47 pm
Dad’s feeding tube was removed, as well as his IV. He is still lightly sedated. He has said funny things while on medication, like “I want a house that is mostly glass. Some will be stained, but a glass house.” And when talking about transportation in the future, “Sometimes I like the kids in the van, but sometimes I don’t like them in the van.” He is doing better. He had a protien shake for lunch, first “food” taken by mouth since the accident.
As of March 19, 2006 @ 10:48 am
Dad woke up last night at about nine. He was in lots of pain, and was heavily sedated. He should be OK, though.
As of March 18, 2006 @ 1:30 pm:
Report from Dr. Reichman
1. Surgery difficult.
2. Dr. Critchfield said it was hard to keep Steve’s oxygen level stable, but they did and Steve’s OK.
3. Will be kept on ventilator for about 24 hours or until oxygen and lungs are totally safe.
4. Alot of bleeding which is unusual. Due to massive bone breakage.
5. Lost 2 liters of blood. Received 4 units of blood.
6. Tor all ligaments and many tendons.
7. Left a drain tube in back for now to be sure all fluids drain.
8. Screwed a post on each side, of vertabrae T2, 3, 4, 6, and 7. Skipped #5 because it was so broken up there was no place to put a screw.
9. Ran a rod through the posts on each side and tightened the rods in place with allen screws.
As of March 17, 2006 @ 10:58 pm:
Today Dad had sort of a party day. He was in relativly no pain, and is well prepared for the surgery tomorrow. He had a priesthood blessing from Russel Spencer and Greg Collier as well as his bishopric and was able to tell everyone that he loved them, and he will go into the surgery with confidence. He will rest well tonight in preperation. He will be drugged unconscience at 6:00, then at 7:00 the doctors will begin preperation. Surgery will begin at 7:30 AM sharp. He appreciates all your prayers.
Mom will be in the hospital with him all day. She is recovering well, and though she wasn’t supposed to be moving, she is still recovering as planned.
As of March 15, 2006 @ 6:30 pm:
Yesterday, Steve had the excess fluid around his lungs drained (about a quart and a half). He also recieved a feeding tube (very uncomfortable). This was later in the night. Today Steve did very well, sort of a rest day. Drew read him some very poignent scriptures and some of your comments from this site.The rest of the family made him an audio tape which he really enjoyed. He wanted to make sure that everyone knows that he can feel all of your prayers.
As of March 14, 2006 @ 3:29 pm:
Still in good condition, Dads lungs have begun to fill up with liquid. There isn’t any infection though, and things are looking good. Once they can empty his lungs, they will attempt surgury again.
Mom has been at the hospital most of all day. She will come home at about five when Lisa Townsend, one of Dads older sisters, comes out to stay with us for a short time.
As of March 13, 2006 @ 6:10 pm:
He can move his arms from his shoulders to his fingers, and is capable of squeezing. He is on oxygen, and is still in lots of pain. They had him on a respirator, and planned on begining surgury today. They knocked him out last night, and when they woke him up this morning, he wasn’t well enough for the surgury; too much internal bleeding. They will continue to let him heal as he can, and will attempt it again in a day or two. He is talking, and is in good humor.
Mom is recovering from her surgury well. She is dealing with Dads condition well, and is following Dads advice to “chill”.
March 14th, 2006 at 11:06 am e
The Spencers in Oregon have been thinking about Steve every minute since we got news on Friday. The picture of him in the hopital really brought the reality to my girls who have continual questions. Julie wishes she could come and relieve Ellen more. I’m looking forward to coming later this month. We love Steve and the townsends!
Great job to Andrew for this site!
Bob
Here’s a few snippets from G-ma Spencer’s email to us recently:
[Sunday, March 12]
I spent the day with Steve again. He has an oxygen mask on his face with air being pumped into it and resistance when he exhales. This is to keep air in his lungs so they are never empty completely. But it is very tiring for Steve of course. He is alert and can talk, but the oxygen mask over his chin, mouth,nose and up to inbetween his eyes makes it difficult to hear or understand him. And if he removes the mask the buzzer blares and calls a nurse.
His lungs and heart bruises are still serious but there appears to be no punctures. They gave him two pints of blood today to replace the blood lost in the accident – internal bleeding that was absorbed internally, but left his blood count low. The back surgeon would really like to get on to the back operation but worries about having Steve on his stomach for 7-8 hours with his lungs and heart so tender and vulnerable. They were considering placing him on a lung respirator to work his lungs for him during the night tonight and go ahead with the surgery tomorrow. But first they want to do a cat scan to check out his heart condition. Also, with 5 broken ribs, lying on his stomach for 8 hours will not be much fun. Of course he would be totally sedated and feel nothing during the surgery, but I am sure his ribs would hurt even more when he regained consciousness. Anyway, none of that is our decision. The surgeons just want to do whatever they can as soon as they can to remove all the splintered bone fragments down his spine so their smart edges don’t cause Steve more damage with other surrounding tissues.
...
[Monday, March 13]
During the night Steve had a temperature come – about 101 degrees, – which made them delay the surgery. There may be an infection inside somewhere and they won’t want to operate unless they are sure he is totally safe. So they put him on an antibiotic for a few days Dr. Reichmann [back surgeon] is very cautious and careful – a good thing in this case.
...
[Adam] and I discussed what we could do to cheer Steve up so he wouldn’t be so lonesome and Adam decided we should make a poster. He went to the garage and returned with a roll of newsprint – probably something Ellen uses for Scouts. A neighbor donated a box of markers. So when the two girls arrived home he supervised having them each take a segment of the horizontal banner and draw pictures. Nicole painted hospital beds and visitors standing by them. Abbie drew her hand in several places, some funny faces to make him happy, and wrote her name. Drew and Natalie painted their own pictures and loving messages. Andrew wrote: “Business in the front; party in the back”, with a drawing of a man’s profile that he says has meaning to his Dad. Then across the top in big bright letters Adam wrote, “We love you Dad!” It was a masterpiece. (On my way tonight I stopped at the hospital and taped it up high above the door inside Steve’s room, hoping he can see it in the morning when the light is on. That is, if the nurse allows such a thing to remain in an ICU sterilized room.)
...
When Ellen, Anthony and Shelly got home later from the hospital, Abbie was upstairs… Ellen went upstairs and found Abbie who excitedly asked, “Is Daddy home? Is he behind you in the bedroom? Is he downstairs?” To each answer Ellen had to reply, “No, he is still at the hospital getting better.”
“When does he get to come home? In two days?”
“No, not for a hundred days.” (Ellen giving the biggest number that Abbie would understand.)
March 14th, 2006 at 2:01 pm e
Just wanted to thank all those who were with us that day with steve. Daniel, Anthony, Dan Gomez,Tyler,Sandra,Alan and a big thanks to Mike Merrill he continues to help with visits and picking up and taking family to the airport. I know Steve has a strong mind and a great attitude and I know I am taking from that. He is a great brother to all of us and has always been there for us and continues to be there. What a man my little brother has grown into. I know how proud I am of him and what he has done with his life and the effects he has on everyone that meets him. He is not just a great brother,father,husband and friend but a great man. The day of his crash he stayed very calm and made us all stay calm. That says alot to me. Thanks again to everyone…...Rick
March 14th, 2006 at 4:52 pm e
We all miss Steve, and hope he recovers quickly.
We’ll keep him in our prayers.
March 14th, 2006 at 8:40 pm e
Andrew very well done on this site, it’s a smart idea! You are doing awesome in keeping up with things, at school, work, just with everything! I commend you for being so strong through this! Dont want to make it a cheesy note, sorry, just “jays” way to show I care. Just wanted to let you know I’m glad that your dad is getting to feel better and hope he continues on that path. My family is all praying for your dad as well as you guys. We hope all keeps going well!
~Jay
March 15th, 2006 at 3:58 pm e
Prayers from Mex
BE STRONG….as my dad always said to my mom. Our thoughts are with the Townsend family as you get through this tough time….
~Brett y familia
March 15th, 2006 at 5:37 pm e
Andrew, thanks for the informative site. I’m one of Steve’s childhood friends and just heard about the accident from my bro Brett (message above). Can you get this message to Steve?
Steve—this is tragic, man. But I know you, and I know you’re going to turn this around into a positive life-changing event. Everything you touch turns gold. I’m going to be running a half marathon in Salt Lake City in June. I hope I will be able to visit you then. I will certainly be running in your honor. Please know that you will continue to be in my prayers.
Steve—I know there are rough days ahead. You’re going to need energy and strength. I know you get a lot of strength from your family. We both know the source of much more strength as well. At the same time, make sure you realize that it’s OK to have weak moments, too. I’m sure you will always be mindful to ‘be strong’ for everyone, particularly your kids. But when the time is right, let it out buddy. Energy comes in cycles and you need some down time, too.
Steve—I wish I lived closer. I’m in Michigan now. Call me anytime (when the dust settles a bit and you get through the worst of it). Cell phone 734-646-3142.
It’s been too long since we’ve met up. A lot to catch up on. I want to ‘be there’ for you but I need your help to know how. So don’t be shy. Take care my friend.
March 15th, 2006 at 11:59 pm e
Steve,
I wish you could have been there on Sunday as Bishop spoke a few words, and Brother Anderson offered a prayer to end our fast. There was a beautiful feeling of love, and heartfelt concern for you and your family’s well-being.
This past Sunday afternoon my mind went back to the days we were home teachers together. You were the ever faithful home teacher, where once a month visits didn’t suffice. (I definitely felt like the helpless Jr. companion who had to watch you do the home repairs for our home teaching family. In fact, Michelle chided me a few weeks ago when she and I were in Home Depot and I turned to her and asked, “Do we have a hammer?”. I guess I should have been a better apprentice!)
Through these years, I have admired your dedication and enthusiasm in all of your callings. It didn’t matter if it was teaching a Gospel Doctrine, Elder’s Quorum lesson, or filling in to home teach at the end of the month.
Ok, well, maybe you had some help along the way…
Just 2 weeks ago Ellen came to our house in typical Ellen fashion. There she was will all necessary supplies for me to teach the scout Pow Wow. She handed me the merit badge book, packets for each of the kids, and even attendance sheets for all three weeks. If she had more time, she may have even typed up my discussion points! During our conversation, my mind went back six years when she appeared on my front door asking the tough questions. Afterall, Andrew was going to be in my Blazer Scout class and I was new in the ward. She didn’t want her son shortchanged – with a less than fully-committed leader. Don’t worry, no offense taken then or now – only admiration for a mother so committed to her family.
And that dedication has not gone unnoticed.
At Court of Honor just a few weeks ago, the usual awards, advancements, and guest speakers were on display once again. Scout packets for parents were available, as were displays of past Eagle projects. (And who can doubt but that Brother Belliston gives the best Eagle presentations). Of course, Ellen had the used scout shirts and books for sale, among other things (Maybe she had my sons in mind, who fought with me on the way there that basketball attire was appropriate enough dress!)
President Hinckley said,
“...I wish to use every waking hour to give encouragement, to bless those whose burdens are heavy, to build faith and strength of testimony. It is the presence of wonderful people which stimulates the adrenaline. It is the look of love in their eyes which gives me energy.”
Your lives are an example, and gives us encouragement. Know that we will continue to keep you and your family in our thoughts and prayers. Keep fighting the good fight. Finish the course. And keep the faith.
March 16th, 2006 at 9:08 am e
Steve & Ellen
Just briefly looking at some of the comments on this website and then hearing of all those who have called, come by or wanted to wish you well, it made me think of how many lives you have touched.
Sometimes we don’t always realize our circle of influence, but your lives have touched so many—a ripple affect really. And it will continue to. Your courage, your strength, your determination to move forward will have an enormous effect on so many, yourselves included.
You are very loved! I think it is only natural when someone you care about is hurting to want to reach out and do something to ease that hurt. There are so many waiting and willing to show this.
I told Ellen a little bit of this, but…take time: time to be alone, time to cry, time to heal, time to find gratitude, to feel the love being sent your way, and time with each other.
Time really is the greatest of all healers and you will find that as it passes fears will become strengths, your love for each other increase, and questions replaced by understanding.
I think one of the greatest comforts is found in the words of the Savior, “Come unto me, all ye that labour and are heavy laden, and I will give you rest.” The most comforting peace truly comes from him and gives us true rest when we let Him.
We pray for rest and comfort for both of you. We love you both very much and are grateful for the influence you are in our lives. We are here with whatever you need.
March 16th, 2006 at 10:44 am e
Steve,
I just heard about your accident. I want you to know that you and your family will be in my prayers. I have such great memories of you at the old Soft Copy, Word Perfect Manfacturing, Stream International days. I also have great memories of you teaching Elders Quorum and the spirit you would bring. You hang in there. Remember that the Lord will be there to carry you through your trails. Please let Ellen know if you or your family needs something to please let me know.
Take Care and get well soon.
March 16th, 2006 at 10:52 am e
Hi Townsends
Sorry to hear about Steve. I want you to know that my prayers and my families prayers are with you. If there is anything we can do please let us know. Ellen, Andrew and Natalie be strong and know that the lord will bless you and see you through this. I deeply appreciate the three of you and care for you like family. I am always available if you need anything.
Michael Plowman
March 16th, 2006 at 1:19 pm e
Hi Townsend Family,
We’re all very sorry to hear about what happened. Your family is in our prayers. We want to come and see you guys, but as it happens, Justin is recovering from an emergency appendectomy from Sunday morning about 1:00. His dad actually asked if we wanted to call our home teachers to assist in giving him a blessing and I only knew you were in the hospital, Steve. I didn’t know how severe things were, I’m so sorry.
I understand your sense of humor is still in-tact Steve, so I’ll just say that we’ll let you and Andrew just count us this month for your home teaching, if that’s all right with you!
We love all of you very much and think you all “rock!”
The Galloways
March 17th, 2006 at 1:21 pm e
We are thinking about you all and praying for you. Please call us if we can help in any way. We love you.
The Hunsakers here in Provo(Rebecca, Doug, David, and Katie)
March 17th, 2006 at 2:29 pm e
Dear Steven and Family,
I don’t know where to start. I got a phone call from Janet Kent on Monday. She was in Arizona taking care of her new grandson born to Quinchel on Sun., Mar 12. She said Daniel had called and told her about the accident. I was stunned. Later that day, I tried calling Vicky over and over. Finally, I got her on Monday night and she told me everything that had happened. She had just gotten in from the airport 20 minutes earlier. I have talked with her each day. She said there was this site on line. Joe Lindsey had received info from Ray Bell about the site so I got on line for your mom and I will share the information with her when I get off.
Your name is in Oakland, Portland, Boise, Albequerque, Provo, Jordan River, Ogd
I called as many temples as I could in towns where I had loved ones so that I could get your name on the prayer rolls, Steve, and the names of your wife, family, and mom, and her family on as well. I also contacted many of our mutual loved ones here in San Jose who have moved away asking them to pray and fast for you. I know that the more prayers, faith, hope, and petitioning we show towards the Lord in your behalf and for your loved ones that you will be even more blessed.
I read through all the comments from the people who sent their love and best wishes. I knew just how wonderful you were from knowing your mom and dad and you but tears came quickly as I read of the love and devotion others have for you.
Our friendship with your family goes way back to 1970. You have always been so dear to our hearts. I love your mom with all my heart. She is like a sister to me. I have called her each night to see that she is okay and I will continue to check in with her so that I can lift her spirits and strengthen her through my love and support which I have always had for her.
Steven, I will keep you in my prayers each and every day, along with Daniel and your family. I have been through some very challenging times with your mom and your family. You are some of the strongest people I know. I know that you will pull through. I just feel it so intensely in my heart.
I have had many difficult injuries the last four and a half years. Many times I have wanted to give up but I always read something or hear something that gives me a greater desire to hang on. There are so many people who love you and want you to heal and return to all the things that you do so well and all the people you love.
I will contact your mom often, and we will continually pray for you. You come from strong, determined people who serve so many and have overcome so many challenges. I know you have the strength within you to make the most of any test that you face. Know that you are loved, admired, and thought of daily.
Thank you to your son for putting up this web site for us and updating it. It is a powerful tool and so appreciated. I hope there will be daily updates so that we can pray and fast accordingly. Arlan, Jennifer, Jill, Mike, and their families are all praying for you. So am I. I don’t want to stop writing but I know that I should. God bless you, Steven. Lots of love, Clair Ann
March 17th, 2006 at 11:12 pm e
Dear Steve,
Just sending another prayer across the miles asking for Heavenly Father’s blessings on you and your loved ones. Word spreads fast when someone from a ward family is seriously hurt (even though we’re talking 7th ward from years and years ago!). Your dad was a special person in my life and from the comments I’m reading, it sounds like you have had (and continue to have) a great influence on others like he did.
When I’ve faced trials, I’ve tried to take short cuts by asking Heavenly Father what lesson I’m supposed to be learning so I can get it over with quick.
Usually, there’s no answer to that, and I just keep plugging away until hopefully, I get where He wants me to be. Hang in there – and if you ever feel like you just can’t do it any more, let the prayers that are coming your way carry you over the rough spots.
Love & prayers, Leslie
March 21st, 2006 at 7:47 pm e
This story will take a bunch of space here (sorry) but I think it’s worth it. It is the text of an email I coincidentally received yesterday from relatives who are friends with a stake president who is paralyzed.
It goes like this:
There is a Chinese story (author anonymous) of a farmer who used an old horse to till his fields. I first heard it from my son-in-law, Matt Riley, who first heard it in a world religions class at Brigham Young University. I think it is a story worth sharing and remembering. One day, the horse escaped into the hills and when the farmer’s neighbors sympathized with the old man over his bad luck, the farmer replied, “Bad luck? Good luck? Who knows?” A week later, the horse returned with a herd of horses from the hills and this time the neighbors congratulated the farmer on his good luck. His reply was, “Good luck? Bad luck? Who knows?”
Then, when the farmer’s son was attempting to tame one of the wild horses, he fell off its back and broke his leg. Everyone thought this very bad luck. Not the farmer, whose only reaction was, “Bad luck? Good luck? Who knows?”
Some weeks later, the army marched into the village and conscripted every able-bodied youth they found there. When they saw the farmer’s son with his broken leg, they let him off. Now was that good luck or bad luck?
Who knows?
I think the old Chinese farmer had a very sage philosophy of life. At any given moment of our lives it is extremely difficult to accurately judge whether the things that are happening to us are “good luck” or “bad luck”. Usually only the passage of time will reveal how good or how bad some event or nonevent in our lives has actually been.
Joseph who was sold into Egypt by his brothers is a great example of the wisdom contained in the old Chinese story. I have often tried to put myself in Joseph’s sandals which is really impossible, but in trying to do so my admiration and respect for him always intensifies. He was 17 years old when his brothers sold him as a slave to a camel train owned by some hairy Ishmaelites, journeying toward Egypt—“good luck” or “bad luck”? I can envision him with a rope around his neck being led through the desert sand having no idea what his fate would be. If he were at all human like I am, he was probably a tad discouraged wondering why this had happened to him. He may even have muttered in Hebrew, “What bad luck”, as he staggered forward behind the camels. His life had been very good up to that time as the favored son of Jacob, and now to be torn from the love, security, and society of his father and family I’m sure he could not at that moment see any good in it.
Upon arriving in Egypt he was sold as a slave and in maintaining his virtue and seeking to be a true and faithful follower of Jehovah, the God of his fathers, he was cast into prison from which he would not emerge until he was 30 years old. I have often wondered if during those 13 years as slave and prisoner he could ever see the good in what had happened to him. I don’t know that we will ever know the answer to that question. The one thing I think we do know is that this Joseph was a man of great faith, and I get the feeling from reading the text that his faith never wavered for as it is recorded “... the LORD was with him.” I believe he was willing to wait on the Lord and trust in Him before rushing to judgment as to whether his fate was “good luck” or “bad luck” as bleak as it may have seemed at times. It may not have been until he had finally put his brothers to the test, which they thankfully passed that he could clearly see for himself and say to them: “Now therefore be not grieved, nor angry with yourselves, that ye sold me hither: for God did send me before you to preserve life…And God sent me before you to preserve you a posterity in the earth, and to save your lives by a great deliverance. So now it was not you that sent me hither, but God: and he hath made me a father to Pharaoh, and lord of all his house, and a ruler throughout all the land of Egypt.” [Genesis 45:5, 7-8] [emphasis added]
When I had my accident 17 years ago I believe as a family we couldn’t help but think it was such “bad luck”. Nothing like this had ever happened in our family and to think that I would be paralyzed from the neck down and on life-support forever was just almost more than we could take in. We frankly could not see any “good luck” in it or why the Lord would allow this to happen to me. 17 years later we still probably do not have all the answers but in my own mind so much good has come from what at one time seemed so bad. There is no way, for example, that I could ever express to anyone verbally what I have learned about the power of the Atonement through my experience with paralysis. I have learned things about myself and been strengthened in ways that perhaps could never have been without this challenging experience. And then I will always believe that especially my younger two daughters have been blessed with a level of maturity and spirituality that may not have been theirs had they not had so much responsibility thrust upon them at such a very tender age. I have also witnessed Jo Anne shoulder a monumental responsibility and grow spiritually and emotionally powerful in the process.
I think one of the things we need most in life, and often must struggle to obtain, is an eternal vision accompanied by complete trust and faith in the ultimate goodness of God and his love for, and desire to bless each one of us. The Lord wisely counseled all of us: “Search diligently, pray always, and be believing, and all things shall work together for your good, if ye walk uprightly and remember the covenant wherewith ye have covenanted one with another.” [Doctrine & Covenants 90:24] [emphasis added]
So you really won the lottery? Good luck—bad luck—who knows
*****
Steve & family, take care. My prayers continue for your welfare.
Todd Galbraith
March 21st, 2006 at 11:44 pm e
Townsends: Are thoughts are prayers are with you all. We miss seeing you, and hope that you can feel our love and concern for Steve and the whole familiy.
Thanks for keeping us informed, Drew.
Russ, Debora
Robert (Chip), Brad, Michael, Reed, Stewart, Scott, Patrick, Grant and Rachel.
March 22nd, 2006 at 9:43 am e
Steve:
Debbie Jensen (formerly Evans) informed me of your accident and I am so sorry to hear about it. It is just so tragic. You are in my prayers and as I am still in Utah County I am going to try to make it over to the ICU for a visit, if that is ok. If it is email me at potterde@uvsc.edu.
March 22nd, 2006 at 3:43 pm e
Apparently, only immediately family can visit the ICU. Or at least this is what they told me. Sorry Steve. I wanted to visit you. I will be thinking of you and will visit as soon as you upgrade out of ICU.
Cheers my friend,
dennis
March 22nd, 2006 at 6:54 pm e
Townsend family:
We think about your family every day. Lexi says special prayers at night to “bless Abby and Abby’s daddy.” She is especially worried, and has drawn several pictures for your family.
We love you guys SOO much, and really miss seeing you around the neighborhood.
I obviously have no advice, for I doubt anyone can truly understand what you must be going through unless they’ve experienced it themselves. So all’s I have to say is that we love you, miss you, pray for you, and think about you guys every day! If you ever need to call on a friend, or just need someone to babysit…PLEASE don’t hesitate to ask!
Love,
John, Becky, Sierra, Lexi, Jennifer, and baby Erika
(Lexi wants me to put that this is from Baxter too (the dog)
March 22nd, 2006 at 9:25 pm e
Hi Steve.
It’s Greg Schaack.
I appreciate being able to go to this web site for updates and did not want to let another day go by without letting you know that I’ve been thinking about you alot and you are always in my prayers.
We have always been very grateful and blessed over the years to have you and your wonderful family as our neighbors and dear friends. You truly made a positive impact on my life when you were gospel doctrine teacher. I always felt the spirit and left the class a better person. I’ll always look “up” to you. They do not come any better than you Steve, and I mean that sincerely. You have always been a great example to us and we love you and your family.
Kind Personal Regards,
Greg and Karen Schaack and Family
March 23rd, 2006 at 12:57 pm e
I Just wanted to leave a quick note to let you all know that your in our prayers and I wish I were closer to come over and help out! We will be thinking of you and great job Andrew for creating this website
Take care!
Love Leilani
March 23rd, 2006 at 2:56 pm e
Every day when I go to sleep and when I wake up I pray for you Uncle Steven and know you are A very strong man to get through all of this. Your family is great and I know they love you very much. I was in utah visiting when this happened and I still can’t believe it but you need to know that me,sandra and alan are here for you and praying for you every day. Andrew great job on the website. Stay strong uncle steven.
Love, Your nephew Tyler and Family.
March 23rd, 2006 at 6:16 pm e
Steven, We just learned about your accident! We’re so sorry, but we know your going to beat this! Your a terrific young man, we love you! You’ve always been such a strong spirit! We’ll be keeping you in our daily prayers and we’re getting the word out to our family so they can give you support as well in thought and prayer. I wish so much that I could be there to help and to see you! Kudos to your son Andrew for creating this terrific sight so we can all keep up on your progress
We send our love to Ellen and your family and say hi to Anthony! Love, Aunt Sherry and Uncle Jim
March 23rd, 2006 at 11:23 pm e
Aloha! Aunt Sherry told Pat and she called Sean and I. We are very sorry to hear what happened. Sean and I are living in Hawaii now. I was going to visit Grandpa Hamilton with my son Ikaika-Ryan. Sean had a bad accident in 1994. He is going to have 2 more back surgeries himself. Our family knows what is in store for you. Feel free to call or visit us. It has been a very long while. I dont here from anyone. I talk to Uncle Ham daily. I will give him a ring. Again sorry to hear about all this. Mahalo Aunt Sherry for letting us know. Hope all of the family is doing well and happy. Mahalo Kaiulani Ann Stuart Malig
March 24th, 2006 at 9:22 am e
We just found out about your accident and was directed to this site to get all the details (thank you Daniel). We just want you to know that we love and admire you. You are a strong individual who, I know, will meet this challenge with grace and determination. You are an example to all of us. We wish we still lived close by to be able to help your family. Our thoughts and prayers are with you everyday and hope to get out there soon to see you and offer some assistance. I congratulate Andrew on his creation of this website to keep us posted as to your progress. We love you and hope to see you soon!
Amber, Kirk, Briana, Brittany & Lauren Davis
Hollister, CA
March 24th, 2006 at 2:37 pm e
Hi Steve,
I hope I’m not invading, but I really love reading the e-mails your family sends. I was an only child (I know I know….Now you can see why I’m the way I am! ) , so I am envying all the love you have around you. And…..you all seem to like eachother! Amazing! Now I know why you are so great. You come from great people. It doesn’t hurt to have a great wife, too, right Ellen?!
Anyway, I read about Andrew’s sad day last week (which happened to be the day I called – hopefully no coincidence! and I want you all to know that whenever you want to bond with my dysfunctional family and eat junk food to make you feel better, you’re welcome anytime. I’ve done my fair share of griping and complaining during my painful life experiences, so I need to make up some ground and listen to someone else’s
I know I’m not good at calling back about home teaching appointments, but I am there for anything else you guys need Is that enough smiley faces, yet?!
Love You Guys,
Karen Galloway
March 24th, 2006 at 2:40 pm e
OOPS! I always post under “Accident” and I mean to post under “Current Condition,” so there are a lot of smiley face symbols that didn’t copy to the last e-mail. Look under “Accident” or just know it’s full of smiles and winks
!!
Sorry I’m a Dork
Karen
March 25th, 2006 at 12:48 pm e
Hey Steve!
I heard about your accident from Kristen. I am so sorry. You are such an awesome guy! I feel bad that I haven’t been keeping in touch for the last several years. I just want you to know that you are in our prayers as well. I check this website every couple of days, so I too have been following your progress. Debbie has been keeping us informed of things too. I will be in Utah in May for my sister-in-law’s wedding and will try to come and visit with you then. I hope and pray that you will make a lot of progress in your recovery by that time. Stay strong and keep up the good attitude!
Take care!
Love, Christine
March 26th, 2006 at 11:46 am e
Hi Steve,
Just a quick note to let you know I’m still thinking about you.
Today was “Fast Sunday” as next week is General Conference. (Are you going to be able to listen to that somehow? I’d make sure someone sets you up). Anyway, my fasting was focussed on your welfare and the welfare of your wife and children. OK, and for your siblings, mother, others supporting you, etc. But mainly for you.
My son is kicking me off the computer so I must go.
Take care buddy,
Todd
March 26th, 2006 at 10:34 pm e
Steve,
Sorry to hear about your accident. I heard that Debbie Jensen came to visit you. I was thinking of doing the same, but the web site says no visitors at this time. Let me know (via the web site is fine) when you would feel comfortable with visitors and I will stop by. I have talked with Adam Whitefield about this as well. I will try to round him up and we will come see you.
You are a great guy, Steve. I know rehab is hard work, but keep up the good attitude and it will pay off. We think of you often and you are in our prayers.
Derek and Marsha Lindsey
March 27th, 2006 at 5:21 pm e
Steve, Ellen, Andrew & Family,
We want you to know that you have been in our family’s thoughts and prayers since Steve’s accident on March 10th.
As you continue to fight the daily battle, we hope you know, our family appreciates you and your family. Hearing and reading about your families positive attitude helps all of us keep things in perspective and recognize what is truly important in life.
Continue to heal and know you are constsantly in our prayers.
The Rob Ross Family.
p.s. Andrew, great job with the site and thank you for keeping us all informed on your dad’s progress.
April 8th, 2006 at 11:58 am e
Steve, We are with you in this process of change. We thank you and Ellen and your children for all that you are. Our gratitude is undending.—Wayne and Jenny Beck
April 9th, 2006 at 12:49 am e
Steve,
It’s been quite awhile, I hope you can still attach a face with the name. I just heard about your accident a few days ago. I can’t tell you how sorry I am for what you’ve had to go through. The only info I’ve been getting is through your web site, and after looking today (Saturday) it’s good to see you up and around a bit. I can’t begin to understand what all of this must be like, but I’ve always know you as an honest, dedicated person. Even when we were kids I can remember you setting an example for us, not to “just be good” (because, lets face it, we had an inclination for trouble)…but you knew, when push came to shove, how to be strong…how to do the right thing when it mattered. I’ve always remembered that.
It’s funny, over the last year or so I’ve spent a lot of time thinking about our old neighborhood and the kind of life we had growing up…the trouble we would get in, the adventures we sniffed out. You and Daniel were the ring leaders for many of the memorable episodes. It was quite a place back then. Reading Andy D.’s posts on the website brings back a barrage of images. I’m amazed at how vividly your family’s house stands out in those memories. Red shag carpet, hanging wicker chair, your drums in the garage. Bikes, Atari, the mansion, the train tunnel, the neighborhood’s first Commodore 64. In fact, I think I can remember your house better than I can remember mine. Goodness, we must be getting old.
The last time I can remember seeing you in person was at Daniel Chamberlain’s place, probably ten years ago. Right now I’m in Los Angeles studying architecture, up to my eyeballs in finals here at SCIArc (Southern California Institute of Architecture). I still keep my hand in the entertainment business to some extent, and I’ve spent the last three summers in New York working with a children’s theater program. Oh, and I’m getting married this June in Santa Barbara.
Well, aside from this stroll down amnesia lane, I just wanted to say hello and wish you all speed in your recovery. When you can get around to it I’d love to hear from you. I’ll be in LA through most of the summer, but we’re hoping to take a trip to Canyon lands N.P. before to long, so if I’m in the neighborhood I can give you a call. Take care,
Your friend,
Blake
213-926-4452
blake_dain@yahoo.com
April 9th, 2006 at 7:16 pm e
Dear Steve,
We are looking forward to a visit with you. It will probably be during the week of April 17.
We have been reading the website regularly and are so impressed with the progress you are making!! We haven’t left any notes before, but it hasn’t been that we weren’t/aren’t thinking about you. We include you in our prayers regularly. We believe, as you do, that prayers are powerful and we are glad to add ours to all the others that are being said in your behalf.
Love, Elaine
Steve,
Hi this is Rob. We are anxious to stop by and visit. I fully expect that we can still do lunch together when you improve. Let me know when that will be. I am so pleased that before the accident you made time to stop by our office and visit. I said it then and intend to still follow thru by being in touch with you going forward.
I guess you know that Doug and Katrina are headed to Berkley; Doug commented that he thinks he may be the only person he knows to get an undergraduat degree from Columbia, a graduate degree from Berkley and still hold a current temple recommend. if anybody can do it, it will be him.
We are so impressed with your steady progress and more pleased with your commitment to continue to progres. We have prayed for you and admire you and the many close friends that are a part of your life. Looking forward to stopping by soon.
Fondly, Rob
April 20th, 2006 at 6:59 pm e
Hey Steve,
I was just reading your entry about doing a ‘wheelie’ on a wheelchair and somehow the most amazing flashback came to me.
For a period of time, my mom was also in a wheelchair. I frankly can’t remember when, but I DO remember riding in her wheelchair all the way down our long hall in Morgan Hill doing a wheelie. It was pretty fun! In fact, I remember spending many hours in the wheelchair; I got pretty comfortable in it (doing tricks, etc.) Well, I know the focus of my reply here should be about YOU and family, but hey, I take memories when I can get ‘em.
I’m sure with your daily routines that days may seem to be long. But from my perspective of checking in to this website, I’m simply amazed at the progress you are making. Truly a miracle. Gratitude time: can you imagine what your routine would be like 75 years ago without all the gadgets, technology, medical science, etc? So many cool things surround us that make life more…able and adaptable. Options and opportunities are limitless. The fact that I’m communicating with you from thousands of miles away is pretty far out, man
.
Anyway, keep the faith and be nice to your wife. Well, at least most of the time. —Todd
April 20th, 2006 at 7:01 pm e
Video suggestion: Hitchhiker’s Guide to the Galaxy. Just saw it the other day. Nice comic relief. And I think you’ll like the demented sense of humor of the screenwriter.
Another good one: The Princess Bride. I never tire of it.
Later buddy,
Todd
April 27th, 2006 at 3:04 pm e
Steve
I was just looking at the site and getting updated on the blog and I must say I am powerfully impressed with your amazing progress. Your faith and determination are an inspiration to many. We think of you often here at the salt mine and wish for your speedy return as there is plenty of salt to mine.
Sooner than Later
Rick
P.S. Looking forward to seeing your new “wheels” as the new chairs are high tech and very cool.
May 9th, 2006 at 8:11 am e
Steve—congratulations on the arrival home. Well, I guess ‘home’ is wherever you happen to be!
I wish you well on the adjustment.
I am going to be in the SLC area Friday June 2 and Saturday June 3. Any chance you’ll be open to visitors sometime in there? Unfortunately I will miss your open house….
If not, due to the demands of routine, rest, etc., I’ll COMPLETELY understand. Just send me a note to the email address I include with this posting (I guess only admin sees it?) if you get a chance.
Good luck to Ellen and the rest of the family getting Steve into a routine at home. As I remember from our elementary school days Steve is a pretty smart guy—now he’ll probably be able to help with your homework more….
Take care,
Todd
May 23rd, 2006 at 12:44 pm e
It’s funny how one small decision can change your life forever. I am currently fighting a sinus infection and at midnight Sunday, May 21, decided to head to my local Wal-Mart to buy some meds to get the pain out of my jaw. There was only one cashier working – he looked familiar. When I realized who it was, I prayed he wouldn’t recognize me. I mean, you can’t possibly look good at midnight when you have a sinus infection, right? Well, he knew who I was (it’s been 20 years!) – Mark Christensen. We worked together at SoftCopy, WordPerfect. I was amazed. I was even more astonished when he asked me if I knew what had happened to Steve. I was flabbergasted. Steve and his adorable daughter were gracious enough to attend my wedding a year and a half ago. He was and still is, a great man. Brilliant, funny and always a pleasure to be around. You can know that my prayers will be with the Townsends as he fights back. I know you aren’t a quitter Steve. (After all, look how long you put up with Larry Knight!) Please keep me updated. I still have a house in AF, so if you need anything, or if there’s anything I can do, please don’t hesitate to write
May 24th, 2006 at 4:29 pm e
Hey Steve: Tricia left me a message last night briefly describing your accident and letting me know about this site. I have been caught up all morning looking through postings and pictures. It is truly inspiring to read the numerous responses and feel the outpouring of love and concern so tangibly captured within these pages. It was great to see the old SoftCopy/WordPerfect gang at Tricia’s wedding. As I recall, I told you that you hadn’t changed much over the years with the exception of a little more gray on top and from what I’ve read so far, I still think that remains the most remarkable change. You appear to be strong and incredibly resilient, facing this new challenge with your typical sense of humor and curiosity. I am most impressed by your spiritual growth and willingness to learn some extremely difficult life lessons with poise and determination. Both my Mom who had polio from age two and my Dad whose leg was amputated later in his life used wheelchairs as their primary modes of transporatation (but theirs was not nearly as decked out as yours). Mike Schlappi happened to be the student body president at Lakeridge Jr High during my 8th grade year. He was then and still is an inspiration. I would encourage you to make contact with him if you can. My thoughts and prayers are with you and yours now that I know about your situation. I look forward staying informed with regards to your progress and continued improvement. Hang in there. You have so much to offer. Many Blessings, Heather
June 26th, 2006 at 5:14 pm e
Hey Steve…sounds like a great trip!! Good on you and all of the people that helped to coordinate and make this possible. I hope you are able to ‘scoot’ around the country with more ease and confidence in the future. Thanks for the pictures…you have such a great smile – very genuine. What a wonderful adventure…I’m so happy for you and your success!
Continue to take those chances…keep strong and remember you are in our prayers. Perhaps one day we shall be able to ‘catch up’ on the past many years. Thanks again for the update…Most sincerely…Karen (Sally’s Mom)
July 24th, 2006 at 10:46 pm e
Hi Steve and Ellen,
Just thought I would drop you a note and let you know that we are always thinking about you! Sounds like you are doing awesome and making good progress! I wish we could have seen you when you were out in California, that would have been a fun reunion! We are moving up to Washington next week- Kirk is going to work for the folks in Redmond- as the Novellites would say!
)
Thanks for keeping us updated on your progress! You are the man!!
Take Care- Amber